Dr. Prasandan sent this update on Friday:
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Francis is still in a critical situation, though some problems have got settled.
The important problem that looks settled is the air leak, which was causing swelling all over his body and face. Also, he has become more stable lung wise and is mostly off ventilator for over 5 days. He had breathing problems last night and needed ventilator support for a few hours. His left lung is OK and right lung is also partially working. He is needing very low support of oxygen since morning and is breathing by himself.
He is still paralyzed below chest. Can write and communicate. Both upper limbs are OK.
We took him for a CT Scan of chest and neck a week ago. At the same time we did a barium swallow study to assess the status of Oesophagus. They were very informative.
The CT Scan of neck – shows shadow of metallic shrapnel within the spinal cord at the Vertebral level T1, or at the junction of chest and neck. The neuro-surgeons here are of the opinion that it should be removed by surgery and are confident of doing the operation. But he is still not stable for that major surgery.
The CT Scan of chest showed what we expected – the problems with the lung and pleura.
The Barium meal study was done principally because we found that food from his stomach was coming out through the right chest tube. The film clearly shows the barium contrast leaking from the neck (Oesophagus) to the right Pleural cavity/chest. This means that there is a communication between his Oesophagus (Food pipe ) and right chest cavity.
After seeing this, we had to stop giving him feeds through naso-gastric tube and had to start on Total Intravenous (parenteral) nutrition, which is very expensive and having its own risks too. The ENT surgeons and Cardio-thoracic surgeons in this country are not operating on Oesophagus regularly and hence not coming forward to do a surgical correction. Also, it is very risky to operate on neck unless one is experienced and confident. (as it has a lot of vital structures in small area).
Oesophagus is routinely operated in many other countries, including India. So, I had contacted Dr.Radhakrishna P., senior consultant surgical gastro-enterologist in Apollo hospital, Chennai, India, who is a friend of mine. He had advised to do Esophagoscopy, locate where the leak/defect is and close it directly with a covered/metallic stent. We cannot do this as we do not have experts who can deploy Esophageal stents (stent is not available also) here.
So, he advised to do an alternative of surgery to insert a tube into lower part of intestine (feeding Jejunostomy) to give him food, so that he can survive and another surgery in the neck- Esophagostomy/ opening of Esophagus out, so that saliva can be diverted from going down to the chest. The defect can be repaired later when he is more stable. This will improve his chest also.
Dr. Moses has done the feeding jejunostomy 3 days back. But 1 day after the surgery, he vomited greenish(bile containing ) Fluid, which started coming through the chest tube also. This has improved and we have started giving liquid food through the feeding jejunostomy tube.
Esophagostomy is yet to be done.
Dr.Edward (ICU in-charge) was suggesting to get surgeons from abroad to operate on Francis and settle the problems. We are still looking for options. Family was also asking about this possibility. Getting a surgeon from India also is not very easy.
He is maintaining good blood pressure and pulse. Urine output /kidney function is good and is looking forward with hope! So is the family.



HI Uncle Franc
i heard the bad news, but i pray for u every single day, i miss your fun and jokes every time i watch the Zangalewa DVD u gave me , i think of you. Be firm and strong we are together in prayers, always keep up that pretty smile of the current pic. Don’t forget to thank the medical team. love u
Trevor Batte. USA
Hi Trevor, Im Diane and see your Uncle alot while he is in hospital. Thanks you so much for the lovely mail. I have just this minute passed it on to him and he is delighted. Grace tells me you are 6 years old……what a super message for your Uncle. your Uncle francis is still quite sick but is working very hard at getting better and it helps him so much when he gets such lovely mails from his family. Trevor, he is in a bed with very dull and boring walls! and to be honest I think he is a little bored looking at them. Why dont you draw him a picture and post it to him to the hospital and we can put it up for him to look at. He would love that I am sure. Get your Mummy to help you address it to him C/O ICU, International Hospital Kampala, PO BOX 8177 Uganda. Dont be disappointed if it takes a long time to get to him as it has to go through lots of different places.
if you like you can let me know when you send it and I will look out for it and make sure he gets it.
Thankyou again Trevor. Your Uncle Francis is so happy.
Diane
hey uncle sim, i heard whats going on and i can see it……im in india and i wish i was there with you and feel what you are passing through though im far away in india. i dont forget what you made me and if it was not you, i would not have been where i am now . im in deep prayers for you dear uncle every day and i know by the grace of God , you will be fine . quick recoverly dear uncle
i am sorry what happened to francis and it was to late for me to give him my drowring if he was alive i wood but i cannot
i am sorry what happened to uncle francis and it was to late for me to give him my drawring if he was alive i would but i cannot